I remember countless tests, appointments, and hospital visits, yet no one could give us answers. One terrifying day in 1992, I fell into a coma. My parents rushed me to the hospital, fearing the worst, and I spent months fighting for my life. Five long years later, a persistent doctor discovered the cause — a rare blood disorder linked to lupus, a disease that makes the immune system turn on its own body.
Lupus is a disease in which the immune system attacks healthy tissue in any part of the body, in any individual, at any point in their lives. The cause remains unknown, and a cure does not exist. Symptoms can include extreme fatigue, joint pain, hair loss, and debilitating “flares” that make everyday activities difficult or impossible. For me, that’s meant days, weeks, and months when the simplest tasks — getting out of bed, going for a walk, even feeding myself — was next to impossible.
Please give generously to Lupus Canada today, so we can keep raising awareness, advocate for earlier diagnosis and equitable access to care, continue to fund life- changing research – and one day, discover a cure.
Please give generously to Lupus Canada today by visiting www.lupuscanada.org/donation/.
“Lupus has brought unimaginable challenges to our lives, but the holidays remind me of what truly matters: love, resilience, and hope.”
– Diana Bozzo
Living with it has taught me how important it is for families affected by this illness to stay connected and supported. If you are a parent living with lupus or caring for a loved one with this disease, I want to say this: never give up, no matter how challenging it gets. Reach out to other parents, share your experiences, and don’t be afraid to lean on others. You’re not alone in this journey.