A Mother’s Story: Battling Lupus Alongside Her Twin Daughters

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As the holiday season approaches, my heart is filled with a mix of joy, gratitude, and overwhelming emotion. Like many parents, I look forward to sharing festive traditions with my family — the decorations, the warmth, and the time together. But it also brings up a deep sense of worry, as I think about what lies ahead for my twin daughters and me because…
All of us are battling lupus.
My journey with lupus began when I was only 15, I was constantly exhausted and weak, and my body bruised at the slightest touch. My family and I visited doctor after doctor, trying to understand why my body was betraying me.

I remember countless tests, appointments, and hospital visits, yet no one could give us answers. One terrifying day in 1992, I fell into a coma. My parents rushed me to the hospital, fearing the worst, and I spent months fighting for my life. Five long years later, a persistent doctor discovered the cause — a rare blood disorder linked to lupus, a disease that makes the immune system turn on its own body.

I survived, but emerged from that experience forever changed, with a lupus diagnosis, knowing I faced a lifelong struggle with an unpredictable illness.

Lupus is a disease in which the immune system attacks healthy tissue in any part of the body, in any individual, at any point in their lives. The cause remains unknown, and a cure does not exist. Symptoms can include extreme fatigue, joint pain, hair loss, and debilitating “flares” that make everyday activities difficult or impossible. For me, that’s meant days, weeks, and months when the simplest tasks — getting out of bed, going for a walk, even feeding myself — was next to impossible.

Please give generously to Lupus Canada today, so we can keep raising awareness, advocate for earlier diagnosis and equitable access to care, continue to fund life- changing research – and one day, discover a cure.

I’ve experienced three major flares and spent countless hours in hospital beds, unable to care for myself, unable to work, and – it pains me to share – unable to care for my children. I often feel deeply isolated, invisible and depressed, as many people do not understand the severity of this disease or how drastically it reduces one’s quality of life.
When my daughters were born, I prayed they wouldn’t have to go through the same trials. But life had different plans. By the time my twin girls were four and nine, both had developed lupus. At times, watching them grow up with this disease has been difficult and frightening. They miss school, struggle to participate in their favourite sport, volleyball, their social life is complicated, not to mention the bruising, joint pain and rashes. I feel so powerless to see them so young, already battling a relentless disease that many people haven’t even heard of before.
That’s why I’m sharing my story with you today – and won’t ever stop.As we enter this holiday season, my wish for them — and for all Canadians living with lupus — is hope for a brighter future. It starts with awareness. The more people understand how physically and mentally debilitating, isolating and challenging it really is, the better. But we need to do more than that. We need more funding for lupus research, too.
The team at Lupus Canada shared with me how underfunded this disease is in our country; and why they’re pushing the federal government to dedicate $5 million toward lupus-specific research. This funding would be a monumental step forward, helping to develop faster, more effective treatments, save lives, and ultimately improve the quality of life for those living with lupus. But to continue this advocacy, Lupus Canada needs support. That’s where donors like you can help.

Please give generously to Lupus Canada today by visiting www.lupuscanada.org/donation/.

“Lupus has brought unimaginable challenges to our lives, but the holidays remind me of what truly matters: love, resilience, and hope.”

– Diana Bozzo

Living with it has taught me how important it is for families affected by this illness to stay connected and supported. If you are a parent living with lupus or caring for a loved one with this disease, I want to say this: never give up, no matter how challenging it gets. Reach out to other parents, share your experiences, and don’t be afraid to lean on others. You’re not alone in this journey.

Thank you for caring. Your support at this time of the year means the world to my family and countless others impacted by lupus.
 
With all my heart,
Diana Bozzo
P.S. Every donation helps.
Please give today and make it a holiday
season of hope for all families affected by lupus

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