A Message Of Greeting From The Board President
Lupus affects so many people, patients and their families. With lupus so much of what you go through is mysterious and invisible. There is no simple diagnostic test and the symptoms are different for everyone. After being diagnosed in 2009 with discoid lupus and SLE in 2010 like many who share this baffling and complex condition I had a hard time saying no especially as a Mom. “No” had to become the norm for me. However, there is hope. After getting my medications on track I decided I wanted to give back to the community that was there for me leading up to, during and after my diagnosis.
For over 25 years, Lupus Canada has been working with other lupus organizations, including its member organizations to improve the lives of people living with lupus, like myself, through public awareness, research, education and advocacy.
I hope you find our website to be an informative resource. Links to local organizations will help you to learn more about initiatives and events in your community. The staff of Lupus Canada under the direction of Leanne Mielczarek, Executive Director and a dedicated group of volunteers work tirelessly to gather and develop valuable information on our website for people affected by lupus.
Please join me in transforming the diagnosis and experience of living with lupus into a positive force to increase awareness and improve the quality of life for other patients.
Tanya has joined the Board of Lupus Canada in order to bring both her personal interests and professional skills to the Board. Tanya was diagnosed with Discoid Lupus in 2009 and SLE in 2010, and after a few years of trying to get her lupus under control, is finally in a position to give back to the community that helped her in her times of need. Tanya is a mother of two teenage boys and a lawyer who practices in the areas of not-for-profit and charity law. Prior to being a lawyer, Tanya taught high school math and chemistry for several years, and then took a hiatus and started a family. Throughout this time, while maintaining her status as an Ontario Certified Teacher, she worked in the dental field and served as a Municipal Councillor. She has also served as a board member and chair of several other smaller not-for-profit organizations throughout the years and is excited about the opportunities ahead for Lupus Canada.
Shane spent 19 years in capital markets with extensive experience in institutional asset management, institutional sales and trading, equity financings, private placements and institutional equity research. Currently, VP of Investor Relations for The Green Organic Dutchman (TGOD), the global leader in cultivating premium, certified organic cannabis. Prior to working with TGOD Shane was a Managing Director, Institutional Trading with AltaCorp Capital Inc. working in Calgary Alberta. Previous to joining AltaCorp, Shane was Vice President, Institutional Trading at Macquarie Securities, and prior thereto, Tristone Capital Inc. since 2008. Before moving to Calgary, Shane was Head Trader and Portfolio Manager of Passive funds at AEGON Capital Management in Toronto. His volunteer commitments include Play4Kids, a non-profit organization founded by the Dungey Family that aims to improve the lives of children through PLAY. Shane holds a Hons BA in Political Science from York University. Subsequent to joining the industry, he played professional hockey throughout Europe and the minors in North America.
Malcolm Gilroy is a seasoned financial services executive with extensive African experience. He has recently returned from Nigeria where he lived for eight years. Initially he was sent to Nigeria as a Technical Advisor to the World Bank Group, mandated to review the financial landscape of the country and to advise the Nigerian Government on ways to rejuvenate their dormant bond market. He continued to work in Nigeria as an investment banker and consultant. Prior to going to Nigeria Malcolm had a successful career as a bank treasurer and investment counsel in Canada. He is currently a Principal of Pax Terra Inc. a Washington based development and private equity consultant and is also an associate of Logan Wealth Management, a Canadian based Investment Counsel. In addition to Lupus Canada, Malcolm sits on the Boards of The Jane Goodall Institute of Canada and CSCDL Funds (Nigeria) and is a former Chair (President) of the ALS Society of Canada.
Thomas Simpson has several years of experience in government relations, advocacy and stakeholder engagement for a national non-profit and the federal government. Currently, Thomas is the Head of Public Affairs for the Canadian National Institute for the Blind (CNIB). He leads CNIB’s national government relations and advocacy efforts. He works to break barriers and promote accessibility, inclusion and equity for the lives of Canadians with sight loss. In the past, Thomas has worked for Health Canada and the Canadian Nuclear Safety Commission where his work focused on policy research and analysis, regulatory program support and stakeholder management. Thomas graduated from the University of Ottawa with an Honours Bachelor of Social Science Specializing in Political Science with a Minor in History. He is currently working towards a Graduate Certificate in Public Relations through the University of Victoria.
Kerry is a senior lecturer at the University of Ontario Institute of Technology (UOIT) in the Faculty of Health Sciences. His experience in the health care field includes over 30 years of experience as a Health Information Management (HIM) professional, mostly in hospitals. His education includes a masters and doctorate in the field of education, with a focus on adult education, distance learning, and educational technologies. Diagnosed with lupus at a young age, Kerry has lived with lupus for 45 years. The unusual circumstance of a white male with lupus has given Kerry an appreciation for men with lupus and some of the challenges living with a life-long chronic illness. With his experience in the health care field, Kerry also has developed a strong perspective regarding the patient’s and care providers’ points of view in managing chronic illness.
Lauren is a Chartered Professional in Human Resources (CPHR) currently working for a large consulting engineering firm. Lauren’s past volunteer work includes local community associations, a publishing society, and the Lupus Society of Alberta. Lauren was diagnosed with Lupus in 1995 and is passionate about making a positive contribution to the lives of others living with Lupus.
Nicholas has more than 15 years of non-profit management and volunteer experience, and currently works in the tech sector. His non-profit experience includes a two-year term on the Board of Directors of the Lupus Society of Alberta, and a two-year term as the Executive Director of the CKXU Radio Broadcasting Society. Past volunteer experience includes work with seniors, youth groups, and local community associations, as well as coordinating (with Lauren Isherwood) two annual Step Out for Lupus fundraising and awareness events in Lethbridge, Alberta. Nicholas’ his past work experience includes business development roles with Amazon, IBM, Xerox, and leading his own technology startup.
Dr. Holly Jones Taggart
Dr. Holly Jones Taggart is an associate professor in the Faculty of Health Sciences at Ontario Tech University and the director of the Medical Laboratory Sciences program. Her teaching expertise is in the area of human genetics and she has collaborated on teaching innovation projects to develop novel approaches to learning in the classroom. Her research focus is laboratory based and her students currently investigate the molecular mechanisms of cell behaviour in health and disease. Holly joined the board of directors at Lupus Canada to help advance research and education that affects the lives of persons living with lupus and their families.
Vikas is an experienced Wealth Management professional. In the early stages of Vikas’ career, he held several roles across two of Canada’s largest banks. During this time he developed a focus on wealth advisory, with a specialization in investments. Presently, Vikas manages an independent wealth advisory practice with clients based throughout North America. He established his educational foundations with a Bachelor’s degree in Economics and advanced them through earning the Chartered Investment Manager (CIM) designation. Vikas has come to understand lupus through his experience as a primary caregiver and advocate. His foremost goal is to help the organization better the lives of those affected by lupus.
Brenna Bozarth has over a decade of experience successfully navigating international business, politics and diplomacy in the US, Canada and Europe. Her areas of specialty include market entry, reputation and relationship management, corporate communications and risk management strategy. She has worked with governments, multinational corporations, non-profits and think-tanks. Brenna led public affairs for the National Housing Strategy at the Canada Mortgage and Housing Corporation (CMHC), has been embedded at the Pentagon, spearheaded a Nobel Peace Prize campaign, brought representatives from the US, Russia, China, and India together to develop a cyber security partnership, and successfully advocated for women’s rights before a conservative Middle Eastern monarch. She holds an MA in International Political Economy from the University of Kent’s Brussels School of International Studies and a BA from Roosevelt University, where she studied as a Chicago Scholar. She is currently working on a book.
Leanne joined Lupus Canada in 2008. As the Executive Director, she reports to the Board of Directors and leads the operations in Canada. Prior to taking on the role of Executive Director, Leanne previously held the positions of National Manager and National Walk Coordinator. Leanne is a seasoned executive with over 20 years experience in the not-for-profit sector. Leanne went to York University and studied sociology. Through her commitment to the organization lupus awareness in Canada has grown.
Manager, Donor Relations/Special Programs
Cora joined Lupus Canada in 2013. Cora’s dedication to the organization has been instrumental to furthering our initiatives. Cora holds the role of Manager, Donor Relations/Special Programs and reports to the Executive Director. She studied Business Administration and Project Management at Humber.