September 2024

LIVING WITH LUPUS | Cristine S.

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This is my story at 52 years old. I was diagnosed with lupus, fibromyalgia, rheumatoid arthritis, and Sjögren’s disease. After being misdiagnosed for nearly 20 years, I finally found relief in understanding why I was constantly sick, unwell, and always in pain. While this was a relief, it was also devastating. Some days, I can function and push through; other days, I really don’t want to get out of bed. However, with the help of my amazing lupus doctor, I have been reassured at every appointment that the medication I’m on is slowing the progression of the disease. Over the years, I have had my spleen removed, experienced a TIA (transient ischemic attack), and undergone multiple IV treatments after being diagnosed with Immune Thrombocytopenic Purpura (ITP). This past year, I was able to witness my son and my beautiful daughter-in-law get married without experiencing any flare-ups during the wedding. I am forever grateful for that.

My greatest supporters are my husband, my children, their spouses, my mom, my brother, my in-laws, and numerous friends. Music and dancing are my life and joy. I make sure to dance and smile every day. I am forever grateful to be in my 55th year, surrounded by love and support. Yay to all our lupus warriors!

Today is a great day to be alive—put on your dancing shoes and keep on dancing. Thank you to my phenomenal doctor, Dr. Konstantinos Tselios.

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