My Lupus Guide
MyLupusGuide (MLG) is the first interactive website developed specifically for people with lupus. This website provides free access to reliable information for all ages and stages of lupus. Comprehensive in its scope, MLG provides a wide variety of information about lupus and also addresses important lupus-related issues including, pregnancy, dealing with work, explaining lupus to family and friends and much more.
MLG promotes self-management and offers management strategies to help cope with lupus and manage symptoms, side effects, emotional hurdles.
MLG also features videos of health care providers and patients describing their experiences with lupus and a support resources locator, just enter your postal code and search for resources near you.
A major challenge for people living with lupus is the coping with their illness and complex care. MLG provides much needed informational resources for people with lupus, and their families, friends and health professionals.
Learn more about the importance of accessible engagement and self-management for persons with lupus by reading the scientific studies below.
- Neville, C., De Costa, D., Mill, C., Rochon, M., Avina-Zubieta, J., Pineau, C., Eng, D., Fortin, P. (2014). The needs of persons with lupus and health care providers: a qualitative study aimed toward the development of the Lupus Interactive Navigator™. Lupus, 23(2): 176-182. https://www.ncbi.nlm.nih.gov/pubmed/24335012
- Neville, C., De Costa, D., Rochon, M., Eng, D., Fortin, P. (2014) Toward the development of a Lupus Interactive Navigator to facilitate patients and their health care providers in the management of lupus: results of web-based surveys. JMIR Research Protocol. 3(4): e65. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4376121/
- Neville, C., De Costa, D., Rochon, M., Peschken, C., Pineau, C., Bernatsky, S., Keeling, S., Avina-Zubieta, Lye, E., J., Eng, D., Fortin, P. (2016). Development of the Lupus Interactive Navigator as an empowering web-based ehealth tool to facilitate lupus management: users perspectives on usability and acceptability. JMIR Research Protocol. 5(5): e44. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4906236/