Quebec pharmacists to begin refilling hydroxychloroquine prescriptions again on Friday May 1
On the Friday April 24th edition of Arthritis at Home, Arthritis Consumer Experts interviewed Dr. Carter Thorne to get the latest information about patient access to hydroxychloroquine in Canada during the COVID-19 pandemic. https://arthritisathome.jointhealth.org/
New Enhanced Survey – Help Lupus Canada track the accessibility of Hydroxychloroquine
Media speculations around Hydroxychloroquine (HcQ) as a potential medication in the fight against COVID-19 have created tensions in the supply chain for this drug. Lupus Canada continues to advocate to ensure lupus patients have access to their medications, most specifically Hydroxychloroquine (HcQ). We have prepared an enhanced version of our previous survey to help us better understand the current situation and evolution Hydroxychloroquine availability in Canada.
Please share this survey with everyone you know that currently takes Hydroxychloroquine and ask them to take part so that we can best address this issue. Thank you
COVID-19: Canada secures order for five million pills of anti-malaria medication eyed by U.S. as treatment
Living Through COVID-19 With A Weakened Immune System
“Hydroxychloroquine has long been a standard treatment for lupus and rheumatoid arthritis patients. But many of them have reported having trouble obtaining it, said Leanne Mielczarek, executive director of Lupus Canada. ‘They are experiencing difficulty,’ she said. ‘In some cases, patients have to go to multiple pharmacies to fill their prescriptions.’” https://nationalpost.com/health/canadian-prescriptions-for-malaria-drug-with-covid-19-potential-surge-some-for-doctors-own-use?video_autoplay=true
Canadian lupus patients missing critical drug after claims it treats coronavirus. To read the full story visit https://globalnews.ca/news/6761222/hydroxychloroquine-lupus-coronavirus-drug
The Canadian Rheumatology Association has released their position statement on COVID-19 and Hydroxychloroquine Supply
Canadian Rheumatology Association Position Statement on COVID-19 and Hydroxychloroquine Supply The Canadian Rheumatology Association (CRA) is committed to supporting its members in their efforts to continue to deliver optimal care for their patients with rheumatic diseases. At the same time, the CRA acknowledges the gravity of the situation with the COVID-19 pandemic and the importance of identifying effective treatments in a timely and scientific manner. The identification of hydroxychloroquine (HCQ) as a possible treatment for COVID-19 has led to significant off-label use, which now threatens access for patients with lupus and other types of inflammatory rheumatic disease who are reliant on this medication for disease control.
To read the full statement visit https://rheum.ca/wp-content/uploads/2020/04/CRA-Statement-and-FAQ-on-HCQ-supply-and-COVID-19-EN.pdf
Lupus Canada hosted a Facebook Live Q&A with Dr. Matsos on Tuesday, March 31. Dr. Matsos answered questions specific to COVID-19 and its impact on lupus.
COVID-19 AND YOUR EMPLOYMENT RIGHTS
While the global coronavirus pandemic escalates. it’s understandable that many employees are nervous about heading into work every day – particularly those with lupus or other autoimmune conditions.
Employers have a positive obligation to take reasonable care to protect the health and safety of employees under occupational health and safety legislation. If an employee has reason to believe that there is a dangerous condition in the workplace, the employee may be able to refuse to attend work or perform certain duties. Occupational health and safety legislation states that employers cannot dismiss, discipline, or intimidate employees for properly exercising a health and safety right.
In the context of COVID-19 pandemic, work refusals could be based on
- a confirmed or presumptive case of COVID-19 in the workplace
- a confirmed case of COVID-19 in an employee’s immediate family
- the risk of potential exposure to COVID-19 from people at work – other employees, clients, customers
- concerns from employees who are particularly vulnerable (over age 65, compromised immune system, other medical condition) not wishing to report to work
In the event of a work refusal, the employer must respond in accordance with occupational health and safety legislation. An investigation will be made into the concerns and, if appropriate, measures to eliminate or reduce the workplace danger will be adopted. If the employee disagrees with the employer’s decision or measures to eliminate the danger, they can contact a health and safety officer who will then investigate the concern. The employer may also contact the HSO if the employee maintains their refusal to perform the work.
An employee who exercises a right of refusal must still be paid until the situation is resolved with the employer, or until the health and safety officer renders a decision. The worker may be assigned alternative duties by the employer in the interim.
If the employer cannot make work adjustments to eliminate the danger, then the employee could be placed on alternate duties. If that’s not possible, then they’d likely explore options like unpaid leave. In this situation, the person would still be employed and not eligible for EI. So this is one of the situations that the new emergency benefit is intended for.
A JOINT MESSAGE TO ONTARIO’S DOCTORS, NURSE PRACTITIONERS, AND PHARMACISTS
We’ve heard you – Canadians living with lupus are having problems filling their prescriptions of hydroxychloroquine. Take a read of the issue in CTV’s article and spread the word.
Potential treatment for COVID-19 should not harm Canadians living with lupus
March 23, 2020 – Lupus Canada and the Canadian Network for Improved Outcomes in Systemic Lupus Erythematosus (CaNIOS) are calling on the Government of Canada to ensure critical supply of hydroxychloroquine for Canadians living with lupus.
“Like all Canadians, we are eagerly awaiting a treatment for COVID-19, to help end this extraordinary pandemic,” said Tanya Carlton, Volunteer President of Lupus Canada. “We at Lupus Canada, as well as researchers and medical professionals at CaNIOS, are aware of increased efforts of using hydroxychloroquine as a treatment for COVID-19. Let us be clear. While we share in the optimism that hydroxychloroquine may be a viable treatment for COVID-19, this must not impact the supply for Canadians living with lupus.”
Anti-malarial medication like hydroxychloroquine plays a critical role for people living with systemic lupus erythematosus – the most common form of lupus. For those living with lupus, hydroxychloroquine is proven to reduce mortality by 50%, prevent disease flares, reduce the need for hospitalization and potentially harmful immunosuppressive drugs, as well as prevent cardiovascular complications and infections.
“While we welcome clinical trials, and applaud pharmaceutical companies who have donated the drug for these trials, in an attempt to find a treatment for and slow the spread of COVID-19, we are greatly concerned about irresponsible messaging, suggesting that ‘everyone’ should take this drug in the face of very little evidence,” said Dr. Christine Peschkin, Chair of CaNIOS and Head, Section of Rheumatology at the University of Manitoba. “As a result, we are concerned at the difficulty Canadians living with lupus are having filling their prescriptions of hydroxychloroquine.”
Without access to medication such as hydroxychloroquine, this will lead to a further burden on Canada’s healthcare system, at such a precarious time. Lupus Canada and CaNIOS have been working with Canadians living with lupus and physicians to raise awareness in this anxious time.
“Because those living with lupus are already immune-compromised, they are at a high risk for COVID-19. We cannot compromise on the safety of those living with lupus,” said Carlton.
Lupus Canada and CaNIOS are urgently calling on the Government of Canada to ensure that vulnerable patients, like those living with lupus, have access to this critical medication throughout the COVID-19 pandemic.
About Lupus Canada
Lupus Canada is a national voluntary organization dedicated to improving the lives of people affected by lupus through research, public awareness, advocacy, and education.
Lupus is a chronic autoimmune disease that has no specific treatment or a known cure. It is often called “the disease of a thousand faces” because of its many symptoms. Lupus presents itself differently in everyone and this makes it difficult to diagnose. It can cause constant pain, immobility, organ failure – even death.
One in every 1,000 Canadians is living with lupus. For Canadians living with lupus, disabling pain and fatigue can prevent them from being active members of society – it can prevent them from getting a full education, from working to their full potential, and enjoying culture and recreation activities.
For more information, please contact:
905-251-9869 | firstname.lastname@example.org