Empower Your Journey
Reaching out is the first step.
Provincial Resources
British Columbia
The Self-Help Resource Association of British Columbia
Saskatchewan
Saskatchewan Self-Help Network
Quebec
Information & Referral Centre of Greater Montreal Foundation
Quebec
Centre d’Action Benevol du Quebec
Quebec
CAP Sante Outaouais
Nova Scotia
Self-Help Connection Nova Scotia
All Provinces
Canadian Mental Health Association
Online Support Groups
British Columbia
BC Lupus Society Online Support Group Information
Lupus Ontario Online Support Group Information
MyLupusGuide
Use Access Code: lupuscanada
MLG promotes self-management and offers management strategies to help cope with lupus and manage symptoms, side effects, and emotional hurdles.
MLG also features videos of healthcare providers and patients describing their experiences with lupus and a support resources locator; just enter your postal code and search for resources near you.
Research Publications for MLG
Learn more about the importance of accessible engagement and self-management for persons with lupus by reading the scientific studies below.
The needs of persons with lupus and health care providers: a qualitative study aimed toward the development of the Lupus Interactive Navigator™
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Toward the development of a Lupus Interactive Navigator to facilitate patients and their health care providers in the management of lupus: results of web-based surveys.
Development of the Lupus Interactive Navigator as an empowering web-based ehealth tool to facilitate lupus management: users perspectives on usability and acceptability.
- Neville, C., De Costa, D., Rochon, M., Peschken, C., Pineau, C., Bernatsky, S., Keeling, S., Avina-Zubieta, Lye, E., J., Eng, D., Fortin, P. (2016). Development of the Lupus Interactive Navigator as an empowering web-based ehealth tool to facilitate lupus management: users perspectives on usability and acceptability. JMIR Research Protocol. 5(5): e44.
Click Here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4906236/